Free to read.

This issue of emPHasis opens with a six-page special on using AI for health advice. It brings together views from a sociologist, a PH doctor, a counsellor and a psychologist, alongside PHA UK members' own experiences. There's news of the NHS approval of sotatercept, research from the Royal Free Hospital on how it affects the heart, and confirmation that Flolan will be discontinued in the UK from 2028. Personal stories include Tess's trip to the Philippines and Japan, Jayne's climb up Snowdon, a reader's recovery after pulmonary endarterectomy surgery, Shopia's CTEPH journey and Bendjaada's life with PVOD in Algeria. You can also read about PHA UK studies on CTEPH services and life on oxygen therapy, and interviews marking the retirements of nurse Rachel Crackett and Dr Joanna Pepke-Zaba. The issue also covers plans for a new resource on intimacy and relationships, and Coco's Kids Corner column.

This issue opens with cover stars Emily, now 15, and her mum Lorna reflecting on life with PH since Emily's diagnosis as a toddler. A 10-page feature on weight loss injections (GLP-1 medications) covers how they work, advice put together with a specialist pharmacist on side effects and safe access, and four members' own experiences. Cathy and Jayne describe cruising around Europe with oxygen, Christine shares how her choir has helped her with CTEPH, and Tharuka and Dawn tell their own stories. There are research results from member studies on self-image and on sleep, key findings from the latest National Audit of Pulmonary Hypertension, and news on sotatercept as of March 2026. You'll also find Sophie's advice on managing other people's reactions, a chat with nurse Nicky Speed, Kids Corner, a focus on fibre and a new poetry competition. It's for people with PH, their families and anyone supporting them.

This issue of emPHasis shares the results of PHA UK's survey on which PH symptoms affect people most, based on 232 responses from people with PH and 35 from caregivers, with fatigue and tiredness standing out alongside breathlessness. There's a look back at Together25, the anniversary gathering in Birmingham, and a feature on non-prescription medicines and PH produced with input from specialist pharmacy teams. Members share their own experiences. Julie Bestwick and her husband Stephen describe her gym journey, Lois Walker travels the East Coast with her oxygen concentrator, Paula Hartley learns to love her mobility scooter and Bisma Hussain talks about accepting a life without children. Nora Green, Pooja and columnist Raya also feature, along with every entry to the nature photography competition, an interview with winner Nigel Wilson, Coco's Kids Corner, a CTEPH research opportunity and recent fundraising. It's for people living with PH, their families and the wider PH community.

This issue features singer and actor Jen Bardsley-Taylor, who shares how performing has supported her emotional wellbeing since her PAH diagnosis. Bethany Boyden describes being diagnosed with PAH shortly after giving birth to her daughter, and member Neil Gambrell explains how he looks after his mental wellbeing while living with PH and COPD. Colleen Brunetti talks about living with PH in America, and Lindsey Greenwood tells of climbing Kilimanjaro for PHA UK. A feature on alcohol and PH includes views from a specialist nurse and a consultant pharmacist. Dr Chris Chew explains palliative care, and psychotherapist Sophie Papageorgis writes about guilt and shame in chronic illness. You'll also find Chair Iain Armstrong's update on sotatercept, an article on Disabled Student's Allowance, Kids Corner, a chicken balti recipe, fundraising news, Raya's column on fostering cats and a profile of nurse Andy Kerr.

This spring issue opens with young father Josh from Liverpool, who talks about his genetic PAH diagnosis, learning to live with a Hickman line and focusing on what he can do. A dating feature brings together real experiences from Tracey, Debbie and others, alongside mindset advice from psychotherapist Sophie Papageorgis, who also writes about self-image and identity with PH. Our new Meet the Members series introduces Salina, Steve, Patrick and Adele. You'll also find Raya's column on learning to drive, Coco's Kids Corner piece on Starlight Children's Foundation, and Bisma Hussain's counselling dissertation on mental health support. News covers the next steps for sotatercept, key findings from the National Audit of Pulmonary Hypertension for 2023-24, the National PH Research Forum, pharmacy services, creatine and a Universal Credit guide written in December 2024. Fundraising stories include Elaine Haslett remembering her daughter Christine.

This issue opens with Neer Mehta reflecting on supporting his sister Kinari over ten years since her diagnosis, and how cycling helps him cope. Emilia Ferraro describes returning to Ecuador with CTEPH, Alysha Sharma shares how she's learning to accept her IV pump, and Quinn Cattermole's parents talk about her diagnosis and the fundraising it inspired. Six people tell their stories for PH Day UK, including Derek Coles, Rebecca Brockbank a year after her heart and double lung transplant, and Claire Lorenzilli. There's also a feature on PHA UK's new self-help programme for people with PH and depression, based on CBT and tested in a study. Psychotherapist Sophie Papageorgis looks at what not to say to someone with PH. Interviews with pharmacist Dr Neil Hamilton, nurse Carl Harries and ward manager John Harrington sit alongside news from the National PH Research Forum, Kids Corner and fundraising highlights. It's for anyone in the PH community, including families and carers.

This issue of emPHasis, PHA UK's member magazine, shares many personal stories. Alex Charlesworth describes planning her wedding day with an IV pump, Sue Deutsch explains how hospice palliative care changed her outlook, and Nadine and Jacs Stanistreet remember their son Aidan. Ray Harding marks 22 years since his pulmonary endarterectomy surgery, and Margaret Bennett and Rashida Begum talk about delayed diagnosis and starting treatment. On research and treatment, PHA UK Chair Dr Iain Armstrong explains the next steps for sotatercept in the UK as they stood in 2024, pharmacist Joshua Miller maps the history of PH medicines, and there's a report on a study of finger prick blood testing for NT-proBNP. You'll also find a report from the World Symposium on Pulmonary Hypertension in Barcelona, interviews with nurse Sam Ali and Senior Clinical Fellow Chris Chew, columns on sleep and coping with hot weather, nutrition features, fundraising news and a Kids Corner.

This issue of PHA UK's member magazine opens with stories from people living with PH. Mike Adams talks about staying positive while living with liver cirrhosis and PH, Kate Alsford reflects on life two years after her diagnosis, and Raya writes about her relationship with her girlfriend Jade. There are tributes to Robbie Saul-Georgel and to Lesley, whose nephews Duncan and Rory are running a half marathon every month in her memory. Research features look at the PHoenix trial on personalising PAH treatment, a study suggesting a one-minute walk test may be as useful as the six-minute test, and people's attitudes to genetic research. The issue also covers findings from the 14th National Audit of Pulmonary Hypertension, tips for travelling with PH, advice from PHA UK support nurses on palliative care, recipes and ready meal guidance, interviews with Judith Hurdman and Josh Miller, Emily's Teen Talk column and a returning Kids Corner.

This issue opens with psychotherapist Sophie Papageorgis, who shares her own PH journey and tips on self-care and mental wellbeing. Dr Mark Toshner discusses sotatercept and its appraisal as they stood in winter 2023. There's a look back at PH Day UK, our first Together event in Sheffield, and the 2023 Living with PH survey, completed by 859 people, which found many are still waiting too long for a diagnosis. Family stories include Dan Williams on his son Rory, Andrea Hampshire on her daughter Abbie, and Jason Smith remembering his mum Lucinda. You'll also find PH consultants cycling from Sheffield to Dublin, nutrition advice from dietician Chermaine Kwant, a new Teen Talk column with Emily Gravenstede, and Dr Emilia Swietlik on the RAPID-PAH interview study.

This issue opens with Annie, who is 20 and waiting for a heart and lung transplant, talking with her dad Mike about the people and dogs helping her through. Kelly and Chris share how they've faced Kelly's diagnosis together, Jane Machell describes life after pulmonary endarterectomy surgery for CTEPH, and Suzanne Calder writes about her daughter Sarah. Young columnist Emily looks back on her first year at secondary school, and Raya writes about Pride and self-discovery. Consultant Pharmacist Neil Hamilton explains flu and COVID-19 vaccines and treatments, with information correct as of September 2023. The Support Nurses answer questions on flying with oxygen and carrying an IV pump. There are also features on nutrition and ultra-processed food, the restrictions on prescribing treprostinil to new patients in England and Wales at the time, telling the DVLA about PH, and a research article on genetic studies in PAH. The issue also covers PH Day UK and fundraising stories from across the PH community.

This issue of emPHasis shares personal stories from people living with PH. Tess Jewson looks back on 15 years since her diagnosis, Tom Packham describes being told he had asthma before he was diagnosed with PH, and Paul plans to run the Cardiff Half Marathon a year after his pulmonary endarterectomy. Maryam Hussain explains how her sister Fatima inspired a book for children with PH, and Aleksandra opens a new Meet the Member series. Research news includes a study testing self-help booklets for low mood or depression, and findings from a study of self-compassion involving 65 people with PH and 29 carers. There's also a feature on sildenafil, nutrition advice on appetite and nausea, help with travel insurance, a guide to Attendance Allowance, columns from Raya and young columnist Emily, a kids' section and fundraising stories, including Karen's run the length of the UK for her friend Wendy.

This issue of emPHasis looks at how people can take care of their general health and wellbeing alongside treatment. Wayne and his wife Kathy talk about Wayne leaving his job of 38 years on ill health retirement because of CTEPH. Maria describes how wellbeing groups at her local hospice have helped her. Dr Ciara McCormack explains her study of home-based exercise programmes, and a specialist physiotherapist answers readers' exercise questions. A mental health section covers research into thoughts, behaviours, anxiety and depression, plans to test a self-help programme for depression, and anonymous accounts from people living with PH and depression. Dr Andy Swift answers questions about artificial intelligence in healthcare. There are also nutrition features on calories and one-pan meals, findings from the latest National Audit of Pulmonary Hypertension and a cost-of-living survey, tips for people newly diagnosed, Raya's column on friendship, a section for children, a report from a patient day in Glasgow and fundraising stories.

This issue of emPHasis, PHA UK's member magazine, features cover star Sophie Gloag on life with a Hickman line, nurse practitioner Tania Riches on getting a PH diagnosis as a healthcare professional, and Julia Taylor looking back on 20 years since her diagnosis. For PH Day UK, Danielle, Talisa and Charoula share their stories under the #HearOurVoices theme, alongside photos of members going the extra mile. Physiotherapist Carol Keen answers questions about exercising with PH, and Consultant Pharmacist Neil Hamilton offers his advice on preparing for winter. Research news covers the STELLAR trial of sotatercept and a Royal Papworth blood sample study in CTEPH. There's also a feature on PHA UK's nutrition work with nutritionist Chermaine Kwant, Emily's experience of starting secondary school, Zac's family waiting for a lung transplant, the adaptive clothing brand Unhidden, and fundraising news. It will interest people with PH, their families and friends.

This summer 2022 issue of emPHasis features people living with PH in America, Australia, Dubai and Turkey, sharing their experiences of daily life and healthcare in their countries. Closer to home, Simon writes about caring for his wife Claire, Natalie looks back on ten years since her transplant, and Maria Brook shares what has helped her stay positive. PH nurse Amanuel Teklesenbet tells the story of arriving in the UK from Eritrea as a refugee. There are members' accounts of having covid, holiday tips and pictures, and a look at palliative care with Dr John Wort and Mother Jane. Research coverage includes findings from a survey about clinical trial design and a planned study into anticancer drugs for PAH. Kaylee writes about her pets, Emily describes her clinic visits, and fundraising news rounds off an issue for the whole PH community.

This issue opens with a focus on menopause, with advice from healthcare professionals, a look at HRT for women with PH, and four PHA UK members sharing their own experiences. Real life stories include Diane Kaylor on living with fatigue, Roy Dewar looking back on his first year since diagnosis, Tia's life with PH in Canada, and Emma Sanger's journey with CTEPH and pulmonary endarterectomy surgery. Emma Ferguson writes about the ups and downs of exercising with PH. There's a spotlight on hospital chaplains, an interview with Consultant Cardiologist Dr Dan Knight and a chat with researcher Dr Chinthaka Samaranayake about his prize-winning study. The issue also introduces our new self-help programme for worry and anxiety, the SPHERe home exercise trial, readers' bathing and showering tips, a children's section, a look back at 21 years of PHA UK, and a digest of the National Audit of PH, which covered April 2020 to March 2021.

This issue follows the #HearOurVoices theme of PH Awareness Week 2021. It rounds up the week's #21in21 challenges and media coverage, and shares headline findings from PHA UK's summer survey on living through the pandemic, which received over 1000 responses from people with PH, their loved ones and parents. Real-life stories include Ros Knight on life after pulmonary endarterectomy surgery, Alex Porter looking back on her diagnosis with Dr Iain Armstrong, Julie Warner on 23 years since her heart and double lung transplant, and Jane Price on her daughter Connie's experience. Carers such as Peter Beech also share their side. There are interviews with surgeon Mr Steven Tsui and Dr Sadia Quyam of Great Ormond Street, expert answers on genetics, balloon pulmonary angioplasty and cold weather, advice on pharmacy support this winter, smartwatches and activity, poetry, fundraising news and a children's pull-out. It's for anyone in the PH community.

This bumper issue includes Rinku Puri talking about life on IV medication, Emma Ferguson reflecting on studying with PH at the University of Leeds, and Malcolm Fordyce's decision to have surgery for CTEPH at 82. Cindy Regalado describes training for a 1001 metre hike in Snowdonia, and Rachel and Philip Anley share their family's experience after their daughter Beatrice was diagnosed. A special feature hears from several people who left work because of PH, alongside information on ill health retirement, flexible working and benefits. There's news of a PHA UK-supported study testing a self-help programme for anxiety, an update on our COVID-19 survey, which drew over 1000 responses, and our campaign for specialist rehabilitation. Experts answer questions on painkillers, oxygen, procedural anxiety and hospice care, and Neil Hamilton explains diuretics. The issue also features palliative care, an interview with nurse Javier Jimenez, a children's pull-out and fundraising news.

This issue of emPHasis shares personal stories from people living with PH. Andrew Sharrock describes his diagnosis with idiopathic PAH and how he embraces his condition like a friend. Vicki Lee talks about life on the transplant list, Barbara Fraser reflects on 15 years with CTEPH, and Gill Stewart remembers her partner Andrew. Judith Reardon explains how qigong has helped her, and Juliet Coffer describes her marathon walking challenge at home. A six-page feature looks at ICU delirium, with insight from a critical care nurse and members who share their own experiences. The first Ask the Experts feature answers questions on exercise, hayfever medication, Hickman lines and check-ups. There's also a guide to using handheld fans for breathlessness, news on the Hybrid Heart research project, an interview with nurse specialist Stuart Craig, tips for cooking with PH, fundraising news and the Green Leaf Crew pages for children.

This spring 2021 issue of emPHasis opens with PHA UK chair Iain Armstrong reflecting on the COVID-19 vaccine rollout. Three members, including David Whittington and Shelly Rouney, share their experiences of pulmonary endarterectomy and balloon pulmonary angioplasty for CTEPH. There's a sleep feature with tips and myth busters, alongside a column from consultant pharmacist Neil Hamilton on sleep medication. You'll also find a preparation form for remote appointments and news of the new Listening Line support service. Personal stories include Andrea Hampshire on her daughter Abbie starting school, Clive Smith remembering his wife Alero, Shana Hindle's volunteering and Sarah Marshall's 5km walking challenge. Research coverage includes the National Cohort Study of idiopathic and heritable PAH, results from a PHA UK member survey on palliative care with 97 responses, and findings from the 11th year of the National Audit of PH. The Green Leaf Crew pull-out offers content for children with PH.

This issue looks back on PH Awareness Week 2020 and shares key findings from Shielded Voices, PHA UK's survey of 824 people about the first three months of the COVID-19 pandemic. The survey ran in summer 2020 and covers emotional and physical wellbeing and support, alongside interview extracts. Paula and Catherine share their double lung transplant stories, Izzy Scott describes her long road to a CTEPH diagnosis and surgery, and Salina Issory reflects on her PH journey. There's an introduction to the PH & Pregnancy booklet with real experiences, an article on hospice care with members' stories, and Dr Gregg Rawlings challenging common misconceptions about anxiety. Readers will also find tips for remote appointments, an interview with children's research nurses Lynsay MacDonald and Eleni Tamvaki, Tess Jewson on her e-bike, fundraising news and the Green Leaf Crew pages for children.

This issue was published during the coronavirus pandemic and reflects that time. Stephen Thompson describes his CTEPH diagnosis at 26, his pulmonary endarterectomy surgery and his recovery. Physiotherapist Katie Dowling talks about her PHA UK funded role at the Royal Brompton Hospital, helping people with PH become more active. A feature with Dr Sarah Woolcock looks at her research into palliative care in PAH, and asks whether it should be thought of as supportive care. There's also an update on the emPHasis-10 quality of life measure, an interview with pharmacist Tom Cooper and a column from pharmacist Neil Hamilton on medicines during the pandemic. Sally Parker remembers her son Josh, and members share poetry written during shielding. The Green Leaf Crew pull-out for children includes Kaylee's advice on starting secondary school. The issue will interest people with PH, their families and supporters.

This summer 2020 issue was written while many people with PH were shielding. Pauline marks five years since her heart and double lung transplant, Sarah describes getting an off-road scooter so she can join her husband and dog in the countryside, and Jason shares how learning to make guitars helped him through grief after losing his wife. June explains how reading poetry aloud helps her manage stress, Pamela talks about adjusting to PH with her rescue dogs, and Pam and Mike share tips for UK holidays. There's an interview with carer Kevin Rowland about supporting his partner Julie, a Me & My Job feature with ward manager John Harrington, and 2.6 challenge fundraising stories. Research pages cover a PHA UK survey of 207 people with PAH about genetics, and a small study of physical activity levels in people with PH. A Green Leaf Crew section offers tips and activities for young people.

This spring 2020 issue of emPHasis opens a new decade for PHA UK with stories from people living with PH. Viv and Denise describe visiting hospital wards in Blackpool with their Pets As Therapy dog Bobbi. Amanda and Yvette explain how they keep swimming with oxygen and with a Groshong line, alongside tips from physiotherapist Carol Keen. Roshni shares how her fashion blog helped her with body image, and Shana writes honestly about being single with PH. Professor David Kiely explains the National Audit of Pulmonary Hypertension, with key findings from the tenth audit covering April 2018 to March 2019. There's an interview with nurse specialist Rachel Crackett, a research spotlight on pulmonary artery changes, and pharmacist Neil Hamilton on why medication doesn't always make you feel better. The issue also includes the Chesterwood Show fundraiser, reviews of online weight loss programmes, news and the Green Leaf Crew pull-out for children and teenagers.

This issue shares findings from a summer 2019 survey in which 498 PHA UK members described how PH affects their emotional wellbeing, alongside key results from the tenth National Audit of Pulmonary Hypertension, covering April 2018 to March 2019. There's a look back at PH Awareness Week and members' own highlights of the year. Personal stories include Nasreen's exercise journey, Mark Stanley on supporting his sister Kelly, Katie Somerfield retraining as a Physician Associate, Richard Kitchener's CTEPH diagnosis and surgery, and Mick and Donald on living later life with PH. Interviews feature nurse specialists Karly Ward and Pam Chikwa. Other articles cover alcohol and weight management, the PH Professionals group, PHA UK's response to the withdrawal of Stayveer, and a new contraception guide. A four-page Green Leaf Crew pull-out is written for children and young people with PH.

This issue looks ahead to PH Week 2019, which ran from 4th to 10th November, with ideas such as Tea & Talk and Darts & Drinks get-togethers. It also mentions PHA UK's survey into the emotional impact of PH, which pointed to loneliness and isolation. Members share their own experiences. Lesley Meek tells how she started a family through surrogacy, Yasmin Swift describes meeting the Queen after her double lung transplant, and Heather Pollitt explains how she got used to the Breelib nebuliser. Jane Barker-Benfield writes about textile crafts, and Julie Royle describes watching Manchester City at Wembley with a disability ticket. There's a look back at PHA UK's sponsorship of the British and World Transplant Games, and a feature on the emPHasis-10 quality of life questionnaire. Other articles cover the SPHERe supervised exercise trial, the Life of Breath project, Pension Credit, an interview with nurse specialist Carl Harries, and fundraising news.

This issue brings together stories, interviews and practical features for people living with PH and those close to them. Alysha Sharma looks back on the year since her diagnosis in May 2018, and Andy and Lynsey share how they met through the PHA UK Facebook group and fell in love. The moving more feature includes physiotherapist Carol Keen challenging common myths about exercise and Lynn Lilly describing how getting active rebuilt her confidence. Michelle Hemmings and Dan Peel talk about taking part in the British Transplant Games. Consultant pharmacist Neil Hamilton explains where selexipag fits among PH treatments after its UK approval in April 2019, and how homecare delivery of PH medication works. There's also a guide to using handheld fans for breathlessness, Professor Ian Sabroe on medical humanities, an interview with Robin Condliffe, a nutrition Q&A on gaining weight, and fundraising news.

This spring 2019 issue of emPHasis marks the start of PHA UK's 20th anniversary year and looks ahead to the conference in May. It explains the DVLA guidance on notifying a PH diagnosis as it stood in 2019. It also shares results from PHA UK's 2018 survey of over 170 people and one-to-one interviews about how PH affects finances. Consultant pharmacist Dr Neil Hamilton writes about Brexit and prescriptions, with information correct as of 11 March 2019, and about bowel health. Personal stories include Claire Beeton on her son Charlie's double lung transplant, Erin Lawson's photography project about her mum Carolyn, Paul Harris on his allotment and Susan Spash on working with PH. There's also an interview with Dr Joanna Pepke-Zaba of Royal Papworth Hospital, a look at support through Anxiety UK, and fundraising news.

This issue of emPHasis opens with a round-up of PHA UK's third annual PH Awareness Week, including a cycle ride from Sheffield to London by staff from specialist centres. An 8-page feature follows, in which Kirsty, Asha, Dan and Kath describe their experiences of lung or heart and lung transplant and talk about why organ donation conversations matter. There's also a summary of the 2018 National Audit of PH, covering data from April 2017 to March 2018. Other stories include Lois's campervan holidays to the Arctic Circle, Jenny keeping positive at 73, Tamsin's art, Peter's ride from Land's End to John O'Groats and a tribute to Sophia from her family. Professor Martin Wilkins talks about his research into zinc in PH, and Sheffield doctors describe a new pathway for hip and knee replacements. The issue will interest people with PH, their families and supporters.

This issue focuses on PH Awareness Week 2018, which encouraged conversations about PH and included a weekend spotlight on organ donation. Sally McHugh describes how her cockapoo Murray changed her life after diagnosis. Volunteer Steve Stickler talks about supporting people preparing for pulmonary endarterectomy surgery at Royal Papworth Hospital. Yasmin Swift shares the anonymous note left on her car, a story that made national headlines. There's an interview with Papworth lead nurse Natalie Doughty and an update from PHA UK on the decision not to make Selexipag available in England. You'll also find a look at physiotherapy research, a guide to yoga, benefits advice for carers, and a pharmacist's article on flu, pneumonia and shingles vaccines. Rounding things off are a feature marking 70 years of the NHS, a report from the international PH conference in Florida and a fundraising roundup. It's written for people with PH, their families and supporters.

This issue of emPHasis shares a range of stories from people living with PH and those around them. Sonia describes her journey to adopt her son Anthony, Kaye and her daughter Kaylee talk about growing up with PH, and Wendy explains how support through Anxiety UK helped her manage anxiety after diagnosis. Chitra Tripathi reflects on life with CTEPH and her surgery, and Will Acres's family remember him through a social media challenge. News covers Scotland's approval of selexipag, balloon pulmonary angioplasty for CTEPH at Royal Papworth Hospital, the IMPHACT study on symptom burden, and Professor Nick Morrell on new genetic findings in PAH. There's also a travel feature, advice on medicines and sun sensitivity, financial help for students, the Disabled Persons Railcard, an interview with Dr John Wort, book reviews, fundraising news and the first PHact Finding and Fun Weekend.

This issue of emPHasis looks at caring for your mind as well as your body. Psychological Wellbeing Practitioner Philippa Horn, who has PH herself, explains how to seek help with low mood and anxiety. Sinead Flood describes how therapy helped her son Darragh cope with a long-term health condition. Tess Jewson looks back on ten years since her diagnosis, Sharon Grainger shares her long journey to a CTEPH diagnosis, and Rebecca Milligan talks about her life with PH and her experience of applying for benefits. There's a summary of the eighth National Audit of Pulmonary Hypertension, covering April 2016 to March 2017, and early findings from exercise programmes in Glasgow and Sheffield. The issue also includes an interview with consultant Colin Church, a research round-up, news on Selexipag, generic medicines and the 2018 review of PIP claims, a feature on the #hellomynameis campaign, readers' happy photos and Phil Marshall's 268-mile run for PHA UK.

People with PH share their experiences throughout this issue. Asha Sagoo offers her tips for everyday life, Shani Fernando talks about studying for a degree in her twenties, and Kevin McAllister describes growing up with PH. Ally Whan's parents remember their daughter and her fundraising. Research physiotherapist Joanna Ford explains a Glasgow study of exercise training for people with PH, and research nurse Val Irvine talks about her job. There's also news of Professor David Kiely's research award and Dr Simon Gibbs retiring from clinical practice at Hammersmith. Practical pieces include pharmacist Neil Hamilton's advice on winter vomiting bugs, first published in the Winter 2015 issue, and an explanation of key words used in benefits applications. The issue also covers PHA UK's financial impact survey, its partnerships with Turn2us and Anxiety UK, fundraising news and a Green Leaf Crew Q&A with 13-year-old Dale Leitch. It's for people with PH, their families, carers and professionals.

This issue centres on the Living with PH survey, in which 563 people affected by PH shared their experiences. It looks at what they said about quality of life and the financial impact of the condition, and how quality of life is measured in clinic. Alongside this are personal stories. Selina Walker describes her outlook six years after diagnosis, Chris Johnson explains how singing helps him, and Raymond Maule tells how a women's rugby team in Leeds supported him. Features cover sleep problems with PH, the benefits of moving more, and help available to carers from Turn2us. There's also news on the peer review of specialist PH centres, Scotland's decision not to fund selexipag, an interview with Papworth pharmacist Duncan Grady, and plans for PH Week in November 2017. It will interest people with PH, their families and supporters.

This issue opens with a report from PHA UK's 19th patient conference at Heythrop Park in Oxford, with talks on treatments, exercise, benefits and managing breathlessness. It introduces PHocus2021, a five-year programme pushing for faster diagnosis, fair access to treatment and less financial hardship, and covers the campaign to protect services at Royal Brompton Hospital. Personal stories include Karen, who lives with PH and systemic sclerosis, couple Sophie and Alex on life after diagnosis, and David, a theatre manager whose diagnosis triggered depression. Carole explains why she takes part in the National Cohort Study, and consultant pharmacist Neil Hamilton answers common questions about alcohol and medicines. There's also a feature on e-bikes with Cas Lawson's experience, a new Turn2us hardship fund, a Green Leaf Crew Q&A with five-year-old Molly, and a fundraising roundup including the London Marathon. It's for anyone in the PH community.

This issue opens with 21-year-old DJ Will Acres, who shares how he has adapted his music and student life since being diagnosed with idiopathic PH. Cynthia, diagnosed at 70, reflects on later life with PH. Asha Sagoo describes her journey to diagnosis, and Joanne Kelly compares being treated in Australia and the UK. There are early headline findings from our 2016 Living with PH survey, which received 563 responses, covering time to diagnosis and views on specialist care. Practical features look at mobility scooters, including insurance, road rules and readers' experiences, plus using your garden as therapy. Consultant pharmacist Neil Hamilton gives tips on planning medicines for summer holidays, and Turn2us explains how to challenge PIP and ESA decisions. You'll also find an interview with consultant Luke Howard, a European study on flying with oxygen, readers' letters, fundraising news and five-year-old Stanley in Green Leaf Crew.

This end of year issue of emPHasis focuses on positivity. Four PH bloggers, including Serena Lawrence and Gemma Cousins, share why writing helps them and send Christmas messages. Police officer Elizabeth Cullen describes her diagnosis, pulmonary endarterectomy and return to work, while Alex Walker and Priya Mistry explain how meeting through pulmonary rehab led to a close friendship. Bunty Cloy writes about life with her husband Bobby after his diagnosis. A feature looks at Singing for Breathing workshops at Royal Brompton and Harefield hospitals. There's a guide to benefits for children and young people with PH, a pharmacist's article on e-cigarettes and stopping smoking, and a piece on food and mood. Emma Cole shares findings from her research on hope, optimism and quality of life with PH. The issue also covers the first PH Awareness Week, a Sheffield patient day, fundraising news and an update on prescription charges.

This issue of emPHasis was published in autumn 2016, ahead of the UK's first PH Awareness Week in November. It offers ten ideas for getting involved, from talking to local media to writing to your MP. Rukhshana Khalifa describes living with PH in her close-knit Muslim community, and Mary Jane Lomer shares how she keeps positive. A transplant feature explains the process and includes the stories of Pauline Ginn and Jocelyn Barker, while Jocelyn's daughter Hope writes about organ donation in Family Matters. There's a guide to oxygen therapy with Dr Luke Howard, and pharmacist Neil Hamilton explains how your local pharmacist can help with medicines. You'll also find an interview with Anie Ponnaberanam, lead nurse for pulmonary endarterectomy at Papworth, along with reports from the International PH Conference in Texas and a support day in Glasgow, news on the NHS cardiac services review, housing benefit advice and fundraising news.

This issue of emPHasis brings together stories and practical features for people with PH, their families and friends. Tess Dunn and Sarah Marshall share what it's like when others can't see your illness. Kathryn Graham talks about writing her book, Life is for the Living, and Patricia Higgins describes her recovery after pulmonary endarterectomy surgery. Clinical psychologist Dr Emma Offord considers how PH affects partners and relationships, and Michelle Tyma gives her personal view of health websites alongside a feature on Dr Google. There's also a look at how pets can support wellbeing, hay fever advice from pharmacist Neil Hamilton, an interview with specialist PH nurse Wendy Gin-Sing, and a call for people to take part in the national IPAH research study. Readers will find guidance on benefits and financial support, a travel feature on oxygen, cruising, medication and insurance, plus fundraising news, five-year-old Emily Gravenstede's Green Leaf Crew answers and Natalie Kerr's organ donation petition.

This spring 2016 issue looks at work and PH, explaining how the Equality Act 2010 protects employees with long-term conditions. Three people with PH, Catherine Makin, Laura Ling and Toby Pettifor, share their experiences of going back to work. Myra Morrison describes her journey of more than a year to receive Personal Independence Payment, and benefits advisor Shaun Clayton offers tips on applying. There's also guidance on financial support for carers from Turn2us. Other features include the Scottish Pulmonary Vascular Unit's new exercise study, inspired by a programme in Heidelberg, and swimming stories from Katie Somerfield and 11-year-old Caitlin Wilson. Consultant pharmacist Neil Hamilton considers the NICE guideline on HRT for women with PH. Chris Straw remembers his sister Amy, Hollie Sassienie talks about her business, and Professor Janelle Yorke is interviewed. News covers the 2015 National Audit, the national patients' survey and plans for PH Awareness Week 2016.

This issue brings together personal stories, expert features and news from across the PH community. Stacie Priddon shares her family's experience of a three-year wait for a heart and double lung transplant, and Professor Paul Corris talks about his career in transplantation and possible future therapies. Lois Parker describes travelling up the Jungfraujoch with her portable oxygen, PH poet Tess Dunn shares her poem From the heart, and Vicki MacDonald explains how yoga fits into her life. Clinical psychologist Vicky Kelly of Great Ormond Street Hospital offers ideas for supporting the brothers and sisters of children with PH. There's a timeline of 15 years of PH treatments, Simon Gibbs on the National Audit of PH, news of a new Papworth guide to PEA surgery and Dr Dan Reed on stem cell research. Pharmacist Neil Hamilton covers winter vomiting bugs, alongside tips on keeping warm, coping with Christmas stress and fundraising stories.

This issue has a special focus on cycling, including a look at power-assisted electric bikes and Sarah Colledge's story of how her e-bike has helped her get out and about. Physiotherapist Carol Keen talks about the benefits of exercise and how to start small, and pharmacist Neil Hamilton writes about flu jabs and other vaccines. A creative writing feature offers tips on writing as therapy and celebrates the life of writer Sara Hunt. In the news, Professor Janelle Yorke announces that the IMPHACT study, run with the University of Manchester, is complete, with full findings due later. PHA UK's new partnership with Turn2us on benefits and grants is introduced. Readers can also meet fundraising runners, hear Toby Pettifor's family story, read an interview with Yvette Flynn about her work with children with PH at GOSH, and find out about new video guides to IV therapy.

This issue brings together personal stories from across the PH community. Laura Ling describes being diagnosed with PH while pregnant, Suzanne Calder writes about her daughter Sarah's diagnosis in the new Family Matters column, and Catherine Dunphy, aged 12, meets Chris Evans at Radio 2. Emma Llewellyn-Bishop from Cardiff shares her experience, and young Mason Lewis answers the first Green Leaf Crew questionnaire. Experts also contribute. Dr Allan Lawrie explains the Sheffield PH Research Biobank, which has collected blood samples from hundreds of people with PH. Clinical psychologist Emma Offord talks about the emotional side of PH, pharmacist Neil Hamilton looks at ways to help people take their medicines, and Professor David Kiely reflects on 20 years of working in PH. There's also a look back at 15 years of PHA UK, a new benefits column, pieces on tai chi and nutrition for stress, mindfulness book reviews and a fundraising roundup.